Posts

Showing posts from November, 2016

Visiting Urgent Care with Dysautonomia

Image
Think back to the last time you went to urgent care (or Terem for my Israeli friends/family). It was probably a fairly easy visit. You probably explained your symptoms, told the doctor how awful you felt, maybe some tests were run to figure out what's going on, and then you were probably sent along your merry way.

When I go to urgent care, it's never really an easy visit.

First, I have to explain that I have an auto-immune disease that messes with the lining of my bladder. Then there's the ulcers in my bladder...and also the ones in my stomach. Next comes explaining dysautonomia. I usually get a blank stare from the doctor or NP and then I get to explain how all of it works and ties together.

Case-in-point: last week I went to urgent care for a UTI and a kidney infection. I explained that sometimes, with Interstitial Cystitis (the auto-immune disease that messes with my bladder lining), it mimics a bladder infection but I didn't think it was the case this time. And my…

The November Drag

Image
About a year ago, I publicly told anyone with Internet access how I was diagnosed with dysautonomia. Then I started this blog. I update it every once in a while. It's usually just a place for me to vent and for people, like me, to feel more normal. When I first started researching this disorder, I was stumped for information - I couldn't find any first-person accounts on how people lived with this stupid disorder.

Fast forward a year, now I'm part of a community of people who share their stories. I'm also able to reflect on how I felt a year ago. One thing that sticks out is that I always feel like shit in November. Always. Fall used to be my favorite time of year. Bring on the pumpkin spice lattes! Now it brings on pain, too many work from home days, and nausea. SO MUCH NAUSEA.



I call it the November Drag. This month drags on. This time it's even worse because I'm being weaned off of a lot of my medicine so my symptoms now include:

daily headachesa throbbing u…

Making Peace with Myself and Where I Am

Image
A friend of mine from college has always been around when I need her. We're not the best of friends but when we need each other, we are there for each other. When she knew I was moving back to Israel, she went to bat for me and tried to get me a job. When she was moving back to the US, I gave her access to my remote job site. We vent to each other on FB. Recently she created a community where women can help each other. She became a life coach and she helps women, like me, reach their potential, and she deserves every penny she earns. She's amazing!

So why am I telling you this? Because I feel a little broken. I'm overworked, tired, and a little spun out of control lately. I work too much, don't take enough time off, and I don't take care of myself. I came really far this year - in my health, in my learnings in my career, in knowing my own potential - but I've taken a few steps back in understanding my own worth, too.

This is where my friend comes in.

I asked f…