Showing posts from June, 2017

No Relief for Migraines

Sometimes life hands you lemons and you can make lemonade. Sometimes life hands you lemons and you cry because your head hurts so much that you don't know what to do with those lemons.

I'm the latter over the last few weeks.

I still have some good days where I feel AMAZING and then I have some really awful days, like today, where I wonder what I was thinking coming into work when I feel so awful.

But I like to show my coworkers that I'm strong enough to be here.

Last week, I was not. I went to bed with a migraine and woke up with what felt like a tornado swirling in my head. The meds I took before I went to bed didn't work. But I still tried to go to work...until I got sick on the side of the road and went back home.

Migraines like this are horrific. It's the only way I can describe it. I've come to understand that some people, who may only get migraines occasionally, need to rest because their heads hurt in such a way that movement makes them ill. I'm rar…

Grateful for Insurance

This morning, my friend Sarah asked "what are you grateful for?" My answer:
"My current healthcare where I cannot get kicked off my insurance because my body fails me. I'm having a bad flare up that came out of no where and it's making me think back to when I wasn't allowed affordable health insurance - even through an employer."

You see, there was a time not too long ago when I was denied health insurance.

Let's backtrack: I was 22 when I was diagnosed with interstitial cystitis (IC). Like dysautonomia, there were doctors who didn't believe IC was a real disorder or disease. At the time I was getting tested until the time I was diagnosed, I had insurance. By the time I had a diagnosis, my insurance told me this was a pre-existing condition that I didn't disclose and I was kicked off my insurance. None of my bills were paid.

I was 22. I didn't know how to navigate the red tape and the bureaucratic system. I felt so lost. How could I get k…