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Showing posts from July, 2016

Weight Loss Goals and Success

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Friends and fans, I have some news but before I get to that, let me back up. When I started this blog, I felt really low because part of this horrid disorder is weight gain. We are prescribed so many pills to subdue our symptoms that we are often left in this downward spiral of shame and sickness. The sickness often happens from side effects caused by the pills prescribed to take away the pain caused by our illness. Following so far? We often feel worse than we did originally but we're told we must take the pills.

I've been on several different anti-depressants used to treat parts of this disorder that are not depression. Side effect: weight gain. I was on medication that had a primary goal of inflating my blood cells with water to keep my blood pressure elevated so I didn't pass out. Side effect: weight gain. I was also put on so many steroids to kill the inflammation that caused my body to hurt. Side effect: weight gain.

See where I'm going with this?

All the meds I…

Grieving Long After Someone is Dead

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Grief comes in waves. At least that's what my Rabbi once told me. My mom has been gone for about 18 months now. Almost exactly 19 months. For some reason, lately the grief is harder than it used to be. I think about her more often than I used to.

Maybe it's not "for some reason". I know exactly what that reason is. I used to be able to talk to my mom about work and right now my work is a bit stifling. When you have a chronic illness, you often feel "lucky" to have a job. I know many people who say "You're so lucky that you can get up and go to work everyday!" and "You're so lucky that your company is ok with you working from home so often when you're sick!"

First, let me make one thing clear: I work, at minimum, 60 hours a week. There's nothing "lucky" about that. With or without being sick, I'm overloaded. That's not normal - not even for a healthy person. Second, my work doesn't have to be "o…