Showing posts from October, 2015

A New Symptom

This (bleep)ing disorder never fails to confuse me! A new symptom crept up about two weeks ago: vision blurriness. I was sitting at my desk at work and all of a sudden my eyes got really blurry and it continued to be blurry the entire day. All I wanted was eye drops in hopes that it would make things better - but it didn't.

It turns out this is another lovely symptom of dysautonomia. I can often deal with the nausea and feeling out of it but COME ON! My eyes?? WHAT THE HECK!

A woman in my dysautonomia support group recommended I look into Sjogren's Syndrome. Someone else recommended checking my BP because my blood pressure could be low.

I'm stressed out, as is, so this just adds insult to injury for me today. Wish me luck, I'm off to make an appointment with an ophthalmologist.

Adventures While Healthy

It's been a while since I wrote anything substantial and I didn't want to write anything on the days where I feel gross and defeated. So, I thought I'd wait until I had a streak of healthy days. Well, folks, that time has come!

A few weeks ago, the hubs and I headed to New York so I could attend a marketing conference (read: speak at) and he could experience the Big Apple. We found some time to hang out together and we walked, a lot! Having various health ailments makes it hard to travel and even harder to walk around big cities but being Israeli, I know the only way to enjoy a big city is to do it by foot. When I got tired, we hopped on the subway and went back to rest. While we were in New York, I did get sick but not from my dysautonomia - I caught a cold (thanks, kids!) and lost my voice a bit. I made sure to pick up some cold meds at the drug store, drink lots of tea with honey, and keep my hydration up.

I need to give thanks to my awesome nephew and his fantastic gir…

Wear Blue for Dysautonomia

Are you wearing blue today? I AM!! I'm wearing blue to help spread awareness for dysautonomia patients like me and millions of other people around the world. Unlike breast cancer, most of the world doesn't know that dysautonomia exists. Patients are often told it's all in their heads and they need to see a shrink. Many patients have a hard time being functional every day and their families just think they are being lazy and anti-social.

This is a real illness and it's an illness that's covered under the Americans with Disabilities Act. It's a chronic illness (read: reoccurring) that happens to also be an invisible illness (read: we look fine on the outside but feel like hell on the inside). So, today, wear blue!

Wear blue. Take pictures of it. Tag me on FB and Instagram. Show me and the world that you support us.

I'll be taking videos all day, so feel free to friend me on FB and share them!

The Cold That Won't Die

Every once in a while I get an awesome VoxBox from Influenster. Sometimes it contains beauty care, other times it contains nail polish. This time, it contained the Braun Thermoscan and I got a chance to play around with it at the perfect time!! Seriously. We're all sick. The kids have had a cold for about 10 days now and I'm at the tail end of it, too. This is the kind of cold that knocks you on your ass.

I keep coughing. When I cough, I look up easy remedies on pinterest. I hate taking more meds than I need to. That's the thing about dysautonomia patients, many of us take SO much medication that we hate taking more of it. Bring on the homemade (read: old school) remedies.

And the nausea won't die. My tell-all symptom that I'm not feeling well comes in the form of debilitating nausea. Which means I don't want to eat. All I want is tea...which isn't good because I need more water than tea. Too much tea brings on the tachycardia. Which  makes me weak. And that…